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THE NETWORK CHICAGO
RESOURCE GUIDE TO
CHRONIC ILLNESS AND CARE |
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This micro-site is intended to give the reader a mini-guide to select resources available in the Chicago area for persons suffering from chronic illnesses and their caregivers. NATIONAL RESOURCES WHO CARES: Chronic Illness in America A comprehensive companion web site with a multitude of resources on chronic care and chronic illnesses. Click on “Resources” Directory Institutions that have websites are highlighted in blue. For direct access to those websites, simply click on the title.
 PAIN
MANAGEMENTInterventional Pain Management 455 S Roselle Rd Ste 127 Schaumburg, IL 60193 Phone: 847 / 301-7809 Fax: 847 / 301-8929 ALZHEIMER’S
The Alzheimer's Association National voluntary health organization researches the prevention, cures and treatments of Alzheimer's disease and related disorders, and provides support and assistance to those affected with the disease and their families. Greater IL chapter provides guidance and support for persons with dementia and their caregivers. Educates and informs the community; advocates for improved public policy and promotes needed legislation, and supports research into the cause(s), prevention, treatment and cure for Alzheimer's disease and related disorders. http://www.alzheimers-illinois.org/tips.html http://www.alzillinois.org/ Rush
Alzheimer's Disease Center Services include education of family and professional caregivers of people with Alzheimer’s. ARTHRITIS
Arthritis
Foundation - Greater Chicago Chapter Serves the Illinois counties of Cook, DeKalb, DuPage, Kane, Lake, McHenry and Will, and the Indiana counties of Lake and Porter. Their office is located in downtown Chicago. The site features self-help services for managing pain, fatigue and depression, as well as water classes and marathon events.
ASTHMA
American
Lung Association of Illinois Site features call center, support groups, family asthma programs and camp for children with asthma. American Lung
Association of Metropolitan Chicago Features family asthma and parent education programs. Chicago
Asthma Consortium Provides health care referrals and links to a variety of services and resources such as comprehensive care facilities, support groups and family programs. Educational Support Groups in Illinois Types (adults, parents, food allergies, adolescents) BIPOLAR
DISORDER AND DEPRESSION
The Child
and Adolescent Bipolar Foundation Educates families, professionals, and the public about early-onset bipolar disorders; supports families to maximize the well-being of the child while minimizing the adverse impact of bipolar disorders and advocates for increased services to families and research on bipolar disorders in the young. National
Alliance for the Mentally Ill of Greater Chicago Depressive
and Manic Depressive Association (DMDA) - Metropolitan Chicago Offers educational programs and support groups for people with depression or bipolar disorder, as well as one for the families of people with depression and bipolar disorder. Site provides links to groups in other Illinois areas, two of which are listed below. DMDA
Fox Valley DMDA of
Gurnee National Depressive
and Manic-Depressive Association (NDMDA) Provides support and information for persons with depression and manic depressive illness, and their families. CHRONIC
BRONCHITIS
American
Lung Association of Illinois Email: mmark@lungil.org Premiere lung health information web site in Illinois whose mission is to provide answers to questions as completely and quickly as possible. Site features call center. CIRRHOSIS
Illinois
Chapter of American Liver Foundation A national voluntary health organization dedicated to preventing, treating, and curing hepatitis and other liver diseases through research, education and advocacy. Loyola University Medical Center liver transplantation service Information on transplant process including indications for transplant, excluding reasons, transplant steps and work-up, waiting, transplantation, long-term discharge, Loyola’s support services, FAQS. Variety of information on liver disorders. DEVELOPMENTAL
DISABILITIES
Aspire of Illinois (formerly Proviso Association for Retarded
Citizens) Services includes respite to caregivers of children with developmental disabilities ages 0-3; and nursing home, residential, supported and shared living alternatives. Department of Disability and Human Development Assistive technology, Hispanic family support, mental health program featuring art therapy for children with developmental disabilities. Assistive
Technology Unit of University of Illinois at Chicago Includes service groups, service delivery, training activities and research activities. Equip
for Equality A private not-for-profit legal advocacy organization designated by the Governor to operate the federally mandated protection and advocacy system (P&A) to safeguard the rights of people with physical and mental disabilities, including developmental disabilities and mental illnesses. Provides information regarding self-advocacy assistance, legal services, public policy advocacy, systems monitoring, training institute on disability rights. Illinois Assistive Technology
Project Promotes independent living through technology. They help people with disabilities in Illinois find the right technology that lets them learn, work, and play with greater independence. Provides disability resources including services, publications and more. Leyden Retarded Childrens Aid/Center for Retarded Adults
Seguin Services
Incorporated Sports training and competition, and motor activities for children and adults with mental retardation and other related conditions. DIABETES
American Diabetes Association - Illinois office Nonprofit health organization providing diabetes research, information and advocacy. Provides information and resources on education programs, events, physicians, etc. Juvenile Diabetes
Association Feature doctor lists, support group, literature, events, dietetic information, recipes for children and adults with diabetes. EMPHYSEMA
American Lung
Association of Illinois Illinois Heart & Lung Associates, S.C., A practice specializing in pulmonology, dedicated to serving the pulmonary needs of Bloomington, Illinois, and the surrounding communities. Clinical Trials in emphysema: University
of Chicago, Respiratory Clinical Research Program Instructions on applying for participation in clinical trials. Protocare
Trials Alexian Brothers Center for Clinical Research (ABCCR)
ENDOMETRIOSIS
Endometriosis
Institute Institute for the Study and Treatment of Endometriosis Non-profit fostering research, education, and clinical advances in endometriosis EPILEPSY
Epilepsy Resource Center of Central Illinois Epilepsy Foundation of Greater
Chicago Blind Service Association Senior services, support, reading and recording services
Chicago
Lighthouse for the Blind Provides advocacy, counseling, assistive devices, and independent
living
Cohen Institute for the Visually Handicapped Educational (reading material, tape recordings), information &
referral
Guild
for the Blind Provides computer training, audio and transcription services,
devotional services, and adaptive technology products.
Hadley
School for the Blind Provides distance learning courses for the blind.
Illinois
Society for Prevention of Blindness Provides education and information for the care, protection and
preservation of sight.
Johanna Bureau for the Blind Kagan Home for the Blind Recordings for
the Blind Provides recordings and education materials for registrants.
Illinois
Deaf-Blind Resources Provides technical assistance, information, and training to address
the early intervention, special education, related services, and
transitional services needs of children with deaf-blindness and
enhance state capacity to improve services and outcomes for children
and their families.
Chicago Hearing
Society Provides the empowerment of deaf, hard of hearing and hearing
people to communicate with each other. Resources include general
information, interpreter referral services, product sales, sign-language
class, deaf line and youth services.
American
Heart Association Provides educational materials on diseases of the heart and circulatory
system. Supports scientific research on diagnosis / treatment of
cardiovascular diseases. Offers special programs, such as Heart
at Work, in local areas (Call the National Center for locations.)
American Liver Foundation - Illinois Chapter
Support Groups:
Hep C of Chicago HEP-C Support Group of Chicago Hepatitis
C Support Group - Peoria BEHIV
- Better Existence with HIV Services include family counseling, case management, various referrals
and a support group for people with HIV and AIDS.
Chicago Women's AIDS Project Offers support groups for women who are HIV positive, as well
as therapy support for families and close friends of women who are
HIV positive
Family Aids Support
Network Services include support groups for families of people who are
HIV positive, as well as support groups and buddy program for people
who are HIV positive.
American
Transplant Association Information and services including funding, legal resources, insurance
alternatives, employment and rehabilitation.
Features support groups, private counseling, equipment for loan,
educational activities, additional resources and information
Provides information, referrals and support groups.
Share information with fellow Lyme disease sufferers and gives
each other support and understanding, to meet new people with similar
interests and possible social activities.
Diamond
Headache Clinic, LTD. The oldest, private clinic in the US devoted solely to the management
of headache pain, the Diamond Clinic now includes an Inpatient Unit
at Columbus Hospital. Serving as a referral center for the National
Institute of Neurological and Communicative Disorders and Stroke,
the Clinic and Inpatient Unit serve as a research site for the NIH.
The Program's special strengths come from a comprehensive, interdisciplinary
approach to headache management by its professional staff of physicians,
nurses, psychologists, pharmacists, dietitians, therapists and counselors
who apply therapies that include medication, dietary and lifestyle
modification, biofeedback training and psychological counseling.
National
Headache Foundation Provides written information about migraines and features support
group links and clinical trials.
National
Multiple Sclerosis Society (Greater Chicago Chapter) Provides information on services including self-support, transportation,
employment services, and conference calls for caregivers.
Rehabilitation Institute of Chicago The Pediatric and Adolescent Program provides rehabilitation for
children and adolescents from birth through eighteen years old who
have learning and/or physical disabilities resulting from illness,
injury or congenital causes. RIC focuses on the whole picture to
ensure that the treatment program meets the unique needs of each
child. RIC treats a wide range of physical and developmental conditions
- cerebral palsy, neuromuscular disease, spina bifida, arthritis,
burns, spinal cord injury, brain injury, orthopedic conditions,
brain-related conditions, such as near drowning or systemic infections.
There are many RIC centers throughout Illinois.
L.I.F.E.
Center of the Rehabilitation Institute of Chicago The Rehabilitation Institute of Chicago's Learning, Innovation,
Family, Empowerment (L.I.F.E.) Center is a consumer resource center
and web site that houses a comprehensive collection of books, video's,
magazines, and other multimedia learning resources specific to people
with physical disabilities and their families. Resources range across
the topic areas of Support & Wellness, Caregiving & Equipment, Recreation
& Leisure, Education & Employment, Housing & Transportation, and
Medication Information & Care.
Shriners
Hospital-Chicago Their mission is to provide the highest quality care to children
with neuromusculoskeletal conditions, burn injuries and certain
other special healthcare needs within a compassionate, family-centered
and collaborative care environment. This mission is carried out
without cost to the patient or family and without regard to race,
color, creed or sex. Funded totally through philanthropy, the hospital
provides expert family-centered medical care for children needing
orthopedic, plastic and reconstructive surgery and spinal cord injury
care. There are 22 Shriners Hospitals for Children nationwide; Shriners
Hospital-Chicago services children primarily in the Midwest, but
referrals are accepted from outside the Midwest if necessary due
to surgical specialties.
National Osteoporosis
Foundation Dedicated to reducing the widespread prevalence of osteoporosis
through programs of research, education and advocacy. Provides referrals
to existing support groups, as well as free resources, training
and materials to assist people to start groups.
National
Parkinson’s Foundation (NPF) Center of Excellence Features information and referrals, and support groups.
National
Psoriasis Foundation The
Midwest Sinus Center (3 locations)
120 Oak Brook Center, Ste. 508 Ingalls Family Care Center Focusing exclusively on sinus care, The MSC offers a broad range
of solutions to sinus problems. They are board-certified ear, nose
and throat doctors who dedicate their careers to diagnosing and
treating patients with chronic nasal and breathing difficulties,
sinus headaches and more. MSC's mission is to relieve sinus suffering,
by offering a full range of services specifically for the diagnosis
and treatment of sinus/nose difficulties including: evaluation and
development of a treatment plan, medical management and medical
procedures such as cauterization and/or surgery. The Center asserts
that many problems can be corrected without surgery. Their website
includes a newsletter that lists bios of the group's physicians.
Northwestern Nasal and Sinus Associates medically and surgically
treats nasal, sinus, and allergy disorders, including RAST allergy
testing, RAST-based immunotherapy, endoscopic sinus surgery and
other procedures. The staff is fully trained to answer most questions,
however, the staff doctor will return calls at the earliest opportunity.
Services include diagnostic nasal endoscopy to determine cause and
extent of sinus problems. Website includes a patient registration
form, allergy questionnaire and other forms that may be completed
prior to the first visit.
Stroke clubs provide support in a group setting to stroke survivors,
their families and caregivers.
Chicago (other support groups listed at website)
Cook
County Hospital Stroke Club Meets last Wednesday of each month, 1:00-2:00 p.m. November and
December meet second Wednesday of the month. Open to stroke survivors
and their families. Social functions and educational presentations.
The
MAGIC Foundation A national nonprofit 501(c)(3) organization providing support
and education regarding growth disorders in children and related
adult disorders, including adult GHD
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